Updated
Reading this site is anonymous. Nothing leaves your device unless you send it.
This policy is written in the same plain English as the rest of the site. Effective November 3, 2026. It is a draft pending counsel review and will be updated before the attorney-connection service is activated.
What we do not collect
- No accounts, no sign-ups. There is nothing to register for.
- No advertising pixels. This site does not load Meta, Google Ads or any other advertising tracker, and never will on pages about medical conditions.
- No IP address, browser or location stored with any message. Our forms and message handling are built not to read them, and our release checks fail if that code is ever added.
- No tracking of what you read to who you are.
Hosting logs
Like essentially every website, our hosting provider keeps short-lived technical logs used for security and uptime. We do not use them to build visitor profiles.
Analytics
At present the site runs no analytics at all. If we add aggregate analytics in future, it will be configured not to collect IP addresses, this page will say so, and condition pages will not report which page you were reading.
The one place that collects information
When the attorney-connection service is active, the request form on Find legal help is the only place on this site that collects personal information, and it collects only what you type: your name, how to reach you, the state where the birth took place, an approximate year if you choose to give it, what would help most, and anything you choose to add. We ask you not to include medical record numbers, Social Security numbers or detailed medical histories.
Why we collect it: to confirm your request with you and, if you confirm, to introduce you to one participating attorney licensed in your state for a free consultation.
Who receives it: the single participating attorney matched to your state and request, and any intake staff working on that attorney's behalf. Never a list, never multiple firms, never an insurer, hospital or data broker.
The business relationship: participating attorneys pay us a flat fee for introductions. Because money changes hands, some state privacy laws treat this as a "sale" or "sharing" of personal information, so we say it plainly here. The choice to submit is always yours, and you can withdraw it.
Consent: the form asks for your explicit consent, in a box that is never pre-ticked, to be contacted by the method you choose and to have your form shared as described. We keep a record of the exact consent wording you saw, its version number and the time you agreed. You can revoke consent at any time by telling us or the attorney to stop.
Retention: we keep inquiry records only as long as needed to make the introduction, answer questions and meet legal obligations, and then delete them. You can ask us to delete your inquiry at any time; unless the law requires us to keep it, we will.
Your rights
Whatever state you live in, you can ask us to access, correct or delete the information you sent us, or to stop sharing it. Email [email protected] with "privacy request" in the subject line. We honor these requests without charge and without any effect on your use of the site. We do not knowingly collect information from children, and this site is written for adults.
Links to other sites
We link to NIH institutes, professional medical bodies, state statutes and official programs. Their privacy practices are their own. Once a participating attorney receives your inquiry, that attorney's handling of your information is governed by their own policies and professional obligations to you.
Changes
If this policy changes in any meaningful way, the date above changes with it and the change is noted plainly here.